Stories of Change – Disability-Inclusive Research Guidance

Thursday, 10 Dec 2020

Stories of Change – Disability-Inclusive Research Guidance – Karen Alexander

 

For international development research to be ethical and uphold high-quality standards it must include people with disabilities. By doing so we ensure all people benefit from development projects, not just a select few. Ultimately, disability-inclusive research helps to achieve better development outcomes overall.

That’s why in 2018, the Australian Government set out to develop a set of guidelines to support and provide practical direction to Not-For-Profits, researchers and policymakers in conducting disability-inclusive research.

Research is often conducted before a development project commences, and the research findings often inform the inception and carrying out of said project. Ensuring the research undertaken is inclusive means people with disabilities are factored into all aspects of a development project and will more likely benefit from the outcomes.

In what was a truly collaborative process, the Research for Development Impact (RDI) Network, CBM Australia, Nossal Institute for Global Health, and Pacific Disability Forum (PFD) joined forces to produce and launch the guidance ‘Research for All: Making Research Inclusive of People with Disabilities.’

People with disabilities, development practitioners and researchers also provided valuable feedback to inform the guide.

So, what’s in it? Practical tools and resources, case studies, checklists, illustrations, and templates. The guide is divided into three sections to break down the many different approaches to inclusion.

  • Section One: the background principles of disability-inclusive development (DID).
  • Section Two: focuses on the ethical considerations and informed consent processes working with people with disabilities. In particular, in the context of development, cultural differences and differences in power.
  • Section Three:  examines each phase of the research cycle (Planning, Design, Implementation and Dissemination) and highlights changes to practice to undertake to include people with disabilities.

At the end of 2019 the guidance was presented at the Australian Council for International Development (ACFID) and was rolled out to the Australian development sector. The guide was well received and our hope is that it will continue to be embraced by those responsible for conducting research, taking us one step closer to a more inclusive future.